The Reason for this Website This web site is designed specifically
for YOU,the patient, to understand your medical condition, find adequate medical care, find support if you need it, and to
help you explain to friends and family why your life has changed.
Why am I qualified to help you?
Well, the truth is, I was diagnosed with dysautonomia in
1994, after many,many misdiagnoses. I did not have internet access at the time and so did not have access to all the information
there is to be found in that way. Creating this website was the best way I could help others like myself!
What happens now?
One of the most important things to do is find a good doctor. You
might want to know what constitutes a good doctor... Well, I could tell you that a good doctor is someone who is knowledgeable
about this condition (which by the way, dysautonomia is an umbrella term for MANY conditions, but we will get into that later!)
and that is true, you do want a knowledgeable doctor. However, you need to keep in mind that a good doctor is also one who
listens to you! Knowledge is not enough when you are dealing with a condition as variable as dysautonomia. One place you can
look for a doctor is:
Another important thing to do, is to have proper support, there
are a few support groups that I am aware of (I am sure there are many more) :