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Dysautonomia Homepage- A guide to living with dysautonomia

Getting Involved
Home
Doctor Referral
Signs and Symptoms of Autonomic Dysfunction
Preparing yourself for a Tilt
FAQ
Links
Testing
Interviews and Site updates
Getting Involved
Newsletter
Inspirational
Archives
Journal
Neurophysiology
Medications
Get Togethers and Upcoming Events
About Us
Contact Us

Not everyone wants to get involved in the same way. On this page we present different options to encourage others to get involved in their own care.

Use your Time Wisely

The most important pointers I can give you:
1) RESEARCH!!
Find out all you can on your own. Utilize your computer, your library,anywhere you can find information about your condition. You must become your own advocate and be able to speak knowledgeably about your medical condition.
2) Make lists.
Keep a pad of paper and a pen near you at all times. Jot down daily to do lists,things to pick up at the store, and questions to research or ask your doctor. This helps people who suffer from brainfog due to blood pressure drops remember all the things they need to do to run their own lives.
3)Keep a journal.
Record all episodes and what you were doing when they occurred.
Learn your triggers and see which ones you can avoid in the future.
4)Eat small meals and drink frequently-
Many people with dysautonomia suffer episodes after eating, cutting down on intake at any one given time will help with this.
We are also prone to dehydrating, and need to keep our fluid intake up (this also helps somewhat with blood volume).
5)Add salt to your diet-
Salt can be added in many ways. Drink tomato juice,eat pretzels or ramen noodles. Gatorade also has high salt content. There are many creative ways to accomplish the addition of salt to a diet.
 

Don't pass the Salt

Register for an Upcoming Seminar

Right now there are no seminars that I am aware of, if you know of one, please let me know.

Make a Donation

http://www.igive.com/  - lets you donate to NDRF when you shop online at an igive store

Write a Letter or Sign a Petition

Right now we have no mailing campaigns...

Dysautonomia Homepage created by Tara Dawn Chiusano

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