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Alabama
H. Cecil Coghlan, M.D.
321 THT, Cardiology Division
1900 University Blvd.
Birmingham, AL 35294
USA
Phone: 205-934-3897
Fax: 205-934-1279
E-mail:
ccoughlan@cardio.tht.uab.edu
Muliple System Atrophy (Shy-Drager Syndrome)
Autonomic Failure (PAF, secondary autonomic
failures)
Orthostatic Intolerance (POTS, mitral valve prolapse)
Other autonomic disorders
Alaska
Arizona
Dr. Timothy Ingall
Department of Neurology
Mayo Clinic Scottsdale
13400 East Shea Blvd
Scottsdale, AZ 85259
USA
Phone: 480-301-7162
Fax:
480-301-8451
Multiple System Atrophy (Shy-Drager Syndrome)
Autonomic Failure (PAF, secondary autonomic failures)
Arkansas
Dr. Kaitalin Juhasz-PocsineDepartment of Neurology
University of Arkansas for Medical Sciences
4301 W. Markham St., Slot 500
Little
Rock, Arkansas 72205
501-686-5838
Autonomic Polyneuropathy
Autonomic Laboratory
California
Frisca L. Yan-Go, M.D.
Department of Neurology
UCLA
710 Westwood Plaza
Los Angeles, CA 90095
USA
Phone: 310-206-8005
Fax: 310-794-7491
E-mail:
fyango@ucla.edu
Multiple System Atrophy (Shy-Drager Syndrome)
Autonomic Failure (PAF, secondary Autonomic Failures)
Orthostatic
Intolerance (POTS, mitral valve prolapse)
Sleep Distrubance and Autonomic Disorders
Colorado
Connecticut
Delaware
Florida
William P. Cheshire, Jr., M.D.
Department of Neurology, Mayo Clinic
4500 San Pablo Road
Jacksonville, FL 32224
USA
Phone: 904-953-7102
Multiple
System Atrophy (Shy-Drager Syndrome)
Autonomic Failure (PAF, secondary autonomic failures)
Other autonomic disorders
Dr. Charles Randy Thompson
8550 University Parkway
Pensacola, FL 32514
850-969-7990
Mainly treats
OI, POTS & NCS, although he does see patients with other autonomic conditions.
Dr. Thompson is a board certified
specialist who had to give up Internal Medicine because of he suffers with dysautonomia. He returned to the University
of Alabama School of Medicine to study under Dr. Cecil Coghlan. He has been back in practice on a limited basis for three
years, treating only those with autonomic problems.
Georgia
Hawaii
Dr. Irwin J. Schatz
1380 Lusitana Street, #709
Honolulu, HI 96813
USA
Phone: 808-538-7021
Fax:
808-586-7476
E-mail: schatzi@hawaii.edu
Multiple System Atrophy (Shy-Drager Syndrome)
Autonomic Failure (PAF, secondary
autonomic failures)
Orthostatic Intolerance (POTS, mitral valve prolapse)
Other autonomic disorders
Idaho
Illinois
Dr. Janice Gilden
Finch University of Health Sciences
The Chicago Medical
School
3333 Green Bay Road
#111E
North Chicago, IL 60064
Fax: 847-578-6935
POTS,
NCS, PAF/Secondary Autonomic Failure/MSA, Diabetes, Mitral Valve Prolapse
Autonomic Laboratory
Indiana
Iowa
Karin L. Loukinen, MD,
Cardiology Medical Associates Clinic (East Campus)
1000 Langworthy, Dubuque, IA 52001
(563) 584-3425 OR 1-800-648-6868
Board certifications: Internal Medicine, Cardiovascular Diseases affiliated
with Mercy Medical Center and The Finley Hospital
Kansas
Kentucky
Sheldon L. Brownstein, MD
Comprehensive Cardiology Consultants, Inc
350 Thomas More Parkway Suite 280 (Northern Kentucky area) Crestview
Hills, KY 41017
(859) 426-0800
Clinical cardiology
Louisiana
Maine
Maryland
Hugh Calkins, M.D.
Carnegie 592
Johns Hopkins Hospital
600 N. Wolfe Street
Baltimore, MD 21287
USA
Phone:
Fax:
410-614-1345
E-mail: hcalkins@jhmi.edu
Multiple System Atrophy (Shy-Drager Syndrome)
Autonomic Failure
(PAF, secondary autonomic failure)
Orthostatic Intolerance (POTS, mitral valve prolapse)
David S. Goldstein, M.D., Ph.D.
NINDS, NIH
10 Center Drive MSC 1620
Building 10 Room 6N252
Bethesda,
MD 20892-1620
USA
Phone: 301-496-2103
Fax: 301-402-0180
E-mail: goldsteind@ninds.nih.gov
Multiple System Atrophy
(Shy-Drager Syndrome)
Autonomic Failure (PAF, secondary autonomic failures)
Orthostatic Intolerance (POTS, mitral valve
prolapse)
Neurally Mediated Syncope
Pheochromocytoma
Hypernoradrenergic Hypertension
Parkinson's Disease with
Autonomic Failure
Other autonomic disorders
Massachusetts
Barry Karas, M.D.
Associate Director Inpatient Cardiology Services
Associate Director Electrophysiology Laboratory :
Baystate Medical Associates
3300 Main Street Suite 2A
Springfield, MA 01199
Phone: (413) 794-7030
Fax: (413) 794-0198
Special Interests: Cardiotoxicity of Antineoplastic Agents Atrial Fibrillation
Syncope
Peter Novak, M.D., Ph.D.
Department of Neurology
Boston University Medical Center
DOB 707, Harrison Avenue 720
Boston, MA 02118
USA
Phone: 617-638-8456
Fax: 617-638-8465
E-mail:
peter.novak@bmc.org
Multiple System Atrophy
Hyperhidrosis
Autonomic Neuropathy
Other Autonomic disorders
Lewis A. Lipsitz, M.D.
Associate Professor of Medicine
Physician-in-Chief and Vice-President
of Medical Affairs
Hebrew Rehabilitation Center for Aged
1200 Centre Street
Boston, MA 02131
USA
Phone:
617-363-8318
Fax: 617-363-8929
E-mail: Lipsitz@mail.hrca.harvard.edu
Syncope and hypotension in the elderly
Michigan
James W. Russell, M.D.
4414 Kresge III
200 Zina Pitcher Place
Ann Arbor, MI 48109
USA
Phone: 734-936-9020
(clinic)
Fax: 734-763-6545
Autonomic Failure (PAF, secondary autonomic failures)
Orthostatic Intolerance (POTS)
Autonomic
Neuropathies
Minnesota
Phillip A. Low, M.D.
Phone the Neurology Appointment Center at (507) 284-1588 between 8 a.m.
and 5 p.m.Central time, Monday through Friday
Write to: Mayo Clinic Neurology Appointment Center 200 First St. SW
Rochester, MN 55905 (your dr MUST refer you)
Adil E. Bharucha, M.D.
Division of Gastroenterology
Mayo Clinic
200 1st Street, SW
Rochester, MN
55905
USA
Phone: 507-284-2687
Fax: 507-255-6318
Other autonomic disorders- Patients with gastrointestinal symptoms,
e.g. constipation, diarrhea or vomiting attributable to a autonomic neuropathy, resulting from Multiple System Atrophy (Shy-Drager
Syndrome or Autonomic Failure (PAF, secondary autonomic failures) or diabetes.
Alexander Schirger, M.D.
Mayo Clinic
200 First Street SW
Rochester, MN 55904
USA
Phone: 507-284-3594
Fax:
507284-1161
E-mail: schirger.alexander@mayo.edu
Multiple System Atrophy (Shy-Drager Syndrome)
Autonomic Failure (PAF,
secondary atuonomic failures)
Orthostatic Intolerance (POTS, mitral valve prolapse)
Adrian Almquist, M.D.
Minneapolis Heart Institute
920 E. 28th Street
Minneapolis, MN 55407
USA
Phone: 612-863-3900
Fax: 612-863-3784
E-mail: aalmquist@mplsheart.com Orthostatic Intolerance
Neurally Mediated Syncope
Syncope
Arrhythmias
Robert D. Fealey, M.D.
Department
of Neurology
Mayo Clinic
200 First Street SW
Rochester, MN 55905
USA
Phone: 507-266-4008
Fax:
507-266-4752
E-mail: fealey.robert@mayo.edu
Multiple System Atrophy (MSA)
Pure Autonomic Failure (PAF)
Hyperhidrosis
Heat Intolerance
Mississippi
Missouri
Montana
Nebraska
Nevada
New Hampshire
Dr. Jeffery A. Cohen
Section of Neurology
Dartmouth-Hitchcock Clinic
One Medical Center Drive
Lebanon,
NH 03756
603-653-1881
PAF/Secondary Autonomic Failure, MSA & Diabetic Autonomic Neuropathy
Autonomic Laboratory
New Jersey
New Mexico
New York
Davendra Mehta , MD,PhD
Mt. Sinai Hospital
1 Gustave L. Levy Place, Box 1054
New York NY 10029
(212) 241-7272
Clinical Cardiology
John Kassotis , MD
New York Methodist Hospital
Dept Of Cardiology
506 6th Street Brooklyn NY 11215
(718) 780-5669
Clinical Cardiology
Steven M. Greenberg , MD
107 Wheatley Road
Old Westbury NY 11568-1210
(516) 562-6647
Clinical Cardiology
Julian M. Stewart M.D., Ph.D Director,
The Center for Pediatric Hypotension
Professor of Pediatrics
Pediatric Cardiology
New York Medical College - Westchester Medical Center
Valhalla, New York 10595
Telephone: 914-594-4370
Specialty: Adolescent/Pediatric Orthostatic Intolerance, Syncope, Chronic
Fatigue Syndrome
Dr. Ludmilla Bronfin
650 First Avenue., 7th Floor
New York, New
York 10016
212-532-6298
POTS & NCS
Dr. Kiril KiprovskiDepartment of Neurosciences
Hospital for Joint Diseases
301 E.
17th Street
New York, NY 10003
212-598-2375
POTS, NCS, PAF/Secondary Autonomic Failure, MSA, Orthostatic Hypotension
Autonomic
Laboratory
Dr. Felicia B. Axelrod
New York University Medical Center
530 First Avenue, suite 9Q
New
York, NY 10016
USA
Phone: 212-263-7225
Fax: 212-263-7041
E-mail: Felicia.Axelrod@popmail.med.nyu.eduFamilial dysautonomia (FD)
Hereditary sensory and autonomic neuropathy
Other pediatric patients with congenital
autonomic disorders
Frank Mazzola, M.D., F.A.C.C.
Clinical Assistant Professor
State University of New York at Stony Brook
North
Suffolk Cardiology Associates
2500-1 Nesconset Highway
Stony Brook, NY 11790
USA
Phone: 516-689-7700
Fax: 516-689-7720
E-mail:
fmazz@compuserve.com
Multiple System Atrophy (Shy-Drager Syndrome)
Autonomic Failure, (PAF, secondary autonomic failures)
Orthostatic
Intolerance (POTS, mitral valve prolapse)
Neurocardiogenic Syncope
Developmental Dysautonomia
Chronic Fatigue Syndrome
North Carolina
North Dakota
Ohio
Dr Blair P Grubb
Medical College of Ohio
Dept. of Medicine- Division of Cardiology
CS 10008
Phone: (419) 381-3697
fax (419) 383-3041
Sheldon Brownstein , MD
Comprehensive Cardiology Consultants, Inc. (Cincinnati, Ohio area) 3219
Clifton Ave., #105 Cincinnati OH 45220
(513) 861-5555
Clinical Cardiology
Dr. Fetnat Fouad-Tarazi, MD Head,
Hemodynamic and Neuroregulation Lab
Department of Cardiology-Desk F15
The Cleveland Clinic Foundation
Cleveland, Ohio 44195
Phone: 216-444-5828
Fax: 216-445-3102
Dr. Thomas Chelimsky, MD
Assistant Professor of Neurology Director,
Autonomic Disorders Division Director,
University Pain Center
Case Western Reserve University Cleveland,
Ohio Phone: 216-844-3495
Fax: 216-844-7624
Autonomic Lab: 216-844-3496
Pain Center: 216-844-1476
Special Interests: Chronic Pain, Dysautonomias, Painful Neuropathies,
Reflux Sympathetic, Orthostatic Hypotensiion, Syncope,
Neuro- Urology University Hospitals of Cleveland
11100 Euclid Ave
Cleveland, Ohio 44106
Phone: 216- 844-3495
Fax: 216- 844-5730
Oklahoma
Oregon
Pennsylvania
Maribel Hernandez, Electrophysiologist
Lankenau Hospital suite 556
Wynnewood, PA 19096 (
610) 649-6980
Suburban Philadelphia
Richard Malamut
Neurological Associates of Delaware Valley
Neurophysiology
Lab, 2 West
Crozer ACP - Suite 533
One Medical Center Boulevard
Upland, PA 19013
610-447-2688
Autonomic
Laboratory
Michael B. Goodkin
Cardiology, Internal Medicine
30 Medical Center
Blvd. Suite 203
Upland, PA 19013
610-874-6262
POTS & NCS
Michael W. Consevage, M.D., Ph.D.
Penn State University
M. S. Hershey Medical
Center
Children’s Heart Group, Suite D
121 N. Nyes Road
Harrisburg, PA 17112
USA
Phone: 717-531-8674
Fax: 717-531-0402
E-mail: mconsevage@psu.edu
Orthostatic Intolerance
Neurally Mediated Syncope
Wishwa Kapoor, M.D.
Suite 933 MUH, 200 Lothrop Street
Pittsburgh, PA 15213
USA
Phone:
412-692-4821
Fax: 412-692-4825
E-mail: wnk@med.pitt.edu
Orthostatic Intolerance (POTS, mitral valve prolapse)
Syncope,
Neurally Mediated Syncope
Rhode Island
South Carolina
Dr. Kenneth Bergmann & Dr. Vanessa Hinson
Department of Neurology
Medical University of South Carolina
96
Jonathan Lucas St., Suite 307
Charleston, SC 29425
843-792-3221
MSA
Autonomic Laboratory
South Dakota
Tennessee
Texas
Benjamin D. Levine, M.D.
Director
Institute for Exercise and Environmental Medicine
Presbyterian Hospital
of Dallas
7232 Greenville Avenue
Dallas, TX 75231
USA
Phone: 214-345-4626
Multiple System Atrophy (Shy-Drager
Syndrome)
Autonomic Failure (PAF, secondary autonomic failures)
Orthostatic Intolerance (POTS, mitral valve prolapse)
Other
autonomic disorders
Dr. Dorothy Kelly
Associate Director
SW SIDS Research Institute
7500 Beechnut Suite 378
Houston, TX
77074
800-305-7437
Treats Children
Autonomic Nervous System Dysfunction (ANSD) with variable symptoms
Gil I. Wolfe, M.D.
Department of Neurology
UT Southwestern Medical Center
5323 Harry Hines Blvd
Dallas,
Texas 75235
USA
Phone: 214-648-6419
Fax: 214-648-9311
E-mail:
Autonomic Failure (PAF, secondary autonomic failures)
Autonomic
Peripheral Neuropathies
Sweating Disorders
Utah
Vermont
Robert W. Hamill, M.D.
Fletcher Allen Health Care
One South Prospect Street
Burlington, VT 05401
USA
Phone: 802-847-4589
Fax: 802-847-2461
E-mail: robert.hamill@vtmednet.orgMultiple System Atrophy
Pure Autonomic Failure
Postural Tachycardia Syndrome (POTS)
Other – general
Virginia
Dr. Alan Pocinki
2141 K St. N.W.
Suite 606
Washington, DC 20037
202-223-2282
POTS
& NCS
Primarily sees patients that have orthostatic
intolerance as a feature of another syndrome, such as CFS, Ehlers-Danlos and related hypermobility syndromes.
Washington
West Virginia
Dr. Robert D. HoeldtkeDepartment of Medicine
West Virginia University Medical School
P.O.
Box 9159
Morgantown, West Virginia 26506-9159
Fax: 304-293-2544
POTS, NCS, PAF/Secondary Autonomic Failure, MSA
Autonomic Laboratory
Dear
Tara,
I specialize in autonomic dysfunction particularly orthostatic
hypotension, orthostatic
tachycardia and related disorders and am
interested in taking care of patients with these disorders. I also have
a
number of research protocols that I may ask patients to participate in
Good luck
with your support group
r hoeldtke
Dr. Hoeldtke is interested in seeing POTS/OI patients who are dissatisfied with their current
therapy, as he is evaluating new treatments. The patients must be willing to travel to Morgantown, West Virginia.
Wisconsin
Wyoming
United Kingdom
Christopher J. Mathias, M.D.
London W1 1NY
Phone: 44-171-886-1468
Fax: 44-171-886-1540
E-mail: c.mathias@ic.ac.uk
Multiple
System Atrophy (Shy-Drager Syndrome)
Autonomic Failure (PAF) and Various Secondary Autonomic Failures (amyloidosis)
Autonomic
Disturbances in Spinal Cord Lesions
Other autonomic dysfunctions (such as hyperhidrosis and syncope)
Canada
Dr. Ronald SchondorfNeurology
SMBD Jewish General Hospital
3755 chemin de la Cote Ste Catherine
Montreal, QC H3T 1E2
514-340-8222
ext.2399
Dr. Maxime Lamarre Cliche
Institut de Recherches Cliniques de Montreal
110,
Avenue des Pins Quest
Montreal (Quebec) Canada H2W 1R7
514-987-5600
Autonomic Laboratory
POTS, NCS, PAF/Secondary
Autonomic Failure, MSA
Jean Cusson, M.D., Ph.D., FRCPC
Internal Medicine Division,
CHUM (Centre hospitalier de l'Université
de Montréal)
CHUM (Hôtel-Dieu)
3840 St-Urbain
Montréal, Qc, H2W 1T8, Canada
Phone: 514-843-2723
Fax: 514-843-2741
E-Mail:
jean.cusson@umontreal.ca
Multiple System Atrophy (Shy-Drager Syndrome)
Orthostatic Intolerance (POTS, mitral valve prolapse)
Other
autonomic disorders
John D. Stewart, M.B.B.S., F.R.C.P.(C)
Montreal Neurological Hospital
3801 University Street, Room 365
Montreal, Quebec
CANADA
H3A 2B4
Phone: 514-398-8980
Fax:
514-398-1285
E-mail: john.stewart@muhc.mcgill.caMultiple System Atrophy
Pure Autonomic Failure
Diabetic Autonomic Failure
Orthostatic Hypotension
Germany
Dr. Carl-Albrecht Haensch
Department of Neurology, Univ. Witten/Herdecke
Klinikum
Wuppertal
Heusnerstr 40
NRW
D-42277 Germany
49-202-896-2645
POTS, NCS, PAF/Secondary Autonomic Failure, MSA,
Diabetic Autonomic Disorders, Autonomic Dysfunction in Intensive Care
Dr. Max Hilz
Department of Neurology
University of Erlangen-Nuremberg
Schwabachanlage
6
D-91054 Erlangen
POTS, NCS, PAF/Secondary Autonomic Failure, MSA, Familial Dysautonomia, Diabetic Autonomic Neuropathy
Autonomic
Laboratory
Wolfgang H. Jost, M.D.
Department of Neurology and Clinical
Neurophysiology
Deutsche Klinik fur Diagnostiks
Aukammallee 33
D-65191 Wiesbaden
GERMANY
Phone: 49-611-577321
Fax: 49-611-577311
E-mail: jost@neurodate.deParkinson’s Disease
Bowel Disorders
Urogenital Disorders
Michael Mueck-Weymann, Ph.D.
Department of Psychosomatic Medicine
Dresden University of Technology
Fetscherstrasse 74
D-01307
Dresden
GERMANY
E-mail: michael.mueck@web.deSomatization Disorders
Cardiac Disease & Depression
Neurally Mediated Syncope
Orthostatic Intolerance
Isreal
J. Racanati Autonomic Dysfunction Center
Rambam Medical Center
Bat-Galim,
31096
Haifa, Isreal
972 4 833 7674
Autonomic Laboratory
Giris Jacob, M.D., D.Sc.
Jacob
Recanati Autonomic Dysfunction Center
Rambam Medical Center
Haifa, Israel
Phone: 972-4-854 3309
Fax: 972-4-854
3308
E-mail: g_Jacob@rambam.health.gov.il
Multiple System Atrophy (Shy-Drager Syndrome)
Autonomic Failure (PAF, secondary
autonomic failures)
Orthostatic Intolerance (POTS, mitral valve prolapse)
Syncope
Other autonomic disorders
Italy
Dr. Paolo Alboni
Division of Cardiology
Ospedale Civile, 44042
Cento
(FE)
Autonomic Laboratory
Dr. Raffaello Furlan
Unita' Sincopi E Disturbi Della Postura
Medicina
2, Ospedale "L. Sacco"
Via G. B. Grassi, 74
20157 Milan
Italy
39 02 39042752
Chronic Orthostatic Intolerance
(POTS), NCS, PAF/Secondary Autonomic Failure, MSA, Fibromyalgia
Autonomic Laboratory
Dr. Pietro Cortelli
Clinica Neurologica
Via Ugo Foscolo, 7
40123
Bologna
Italy
39-051-6442283
POTS, NCS, PAF/Secondary Autonomic Failure, MSA, Associated Sleep Disorders
Autonomic
Laboratory
Prof. Albanese Alberto
Istituto Nazionale Neurologico
Via G. Celoria,
11
20133 Milano
Italy
39 02 2394539
Paf/Secondary Autonomic Failure, MSA, Parkinsonian Syndromes
Autonomic
Laboratory
Japan
Dr. Haruhiko Abe
The 2nd Department of Internal Medicine
University
of Occupational and Environmental
Health, Japan
School of Medicine
Yahatanishi-Ku, Kitakyushu, 807-8555
81-93-603-1611
x2432
POTS & NCS
Autonomic Laboratory
Dr. Hidetaka Tanaka
Department of Pediatrics
Osaka Medical College
2-7,
Daigakucho, Takatsuki-shi
Osaka, 569
+81 0726 83 1221
POTS, NCS & Instantaneous Orthostatic Hypotension
Autonomic
Laboratory
Department of Cardiovascular
Wakayama Medical University Hospital
811-1,Kimiidera,Wakayama City,
Wakayama 641-8509, Japan
+81-73-447-2300
NMS,
OH
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